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Muscular Dystrophy (updated July 2003)

What is muscular dystrophy?

The following information is excerpted from Muscular Dystrophy Association, Australia

The term "muscular dystrophy" covers over 40 separate neuromuscular disorders which have in common the progressive and irreversible wasting of muscle tissue. Some of these diseases are known as dystrophies, the wasting of the muscles from within themselves. Others are atrophies, wasting arising from a disorder originating in the nerve system which causes loss of the ability to use muscles. Various Myopathies, Peripheral Nerve and Metabolic Disorders also fall into the realm of disorders covered by the MDA's program. These neuromuscular disorders (NMDs) are generally, incorrectly, termed "muscular dystrophy."

Following are links to related Internet resources and Internet discussion groups, as well as selected citations from the ERIC database and the search terms we used to find the citations.

You can search the ERIC database yourself on the Internet through either of the following web sites:

NOTE: The primary focus of the ERIC system is education. While the ERIC database contains information on some medical disorders, you may want to search a medical database such as MEDLINE/MEDLARS at the National Library of Medicine, http://www.nlm.nih.gov, or PubMed http://www.ncbi.nlm.nih.gov/PubMed/ or MedWeb at Emory University, http://WWW.MedWeb.Emory.Edu/MedWeb/.

ERIC Citations

The full text of citations beginning with an ED number (for example, EDxxxxxx) is available:

  • In microfiche collections worldwide; to find your nearest ERIC Resource Collection, point your web browser to: http://ericae.net/derc.htm.
  • For a fee through the ERIC Document Reproduction Service (EDRS): http://edrs.com, service@edrs.com, or 1.800.443.ERIC. (no longer available)

The full text of citations beginning with an EJ number (for example, EJxxxxxx) is available for a fee from:

ERIC Search Terms Used

muscular dystrophy

ED276189 EC190955
The Child with Muscular Dystrophy in School. Revised.
Schock, Nancy C.
1985; 22p. Available From: Nancy C. Schock, 8 Marrett Rd., Lexington, MA 02173 ($2.50 prepaid; $4.00 if invoiced).
EDRS Price - MF01 Plus Postage. PC Not Available from EDRS.
Language: English
Geographic Source: U.S.; Massachusetts
Journal Announcement: RIEAPR87
Target Audience: Teachers; Parents; Practitioners
Practical information on children with muscular dystrophy is intended to help parents and teachers facilitate their inclusion in mainstreamed classrooms. Major topics addressed include the following: transportation arrangements; providing full information to the teacher regarding the child's specific abilities and physical limitations; accessibility within the physical school environment; adaptive equipment, lifting, and managing a wheelchair; the role of the teacher in promoting social adjustment and positive peer relationships; individualized physical education; tutoring services during extended school absences; and career guidance. Names and addresses of organizational resources and publications are included.
Descriptors: *Accessibility (for Disabled); *Assistive Devices (for Disabled); Career Guidance; Elementary Secondary Education; Home Instruction; *Mainstreaming; Peer Relationship; *Physical Disabilities; Physical Education; Physical Mobility; Social Adjustment; *Teacher Student Relationship; Wheelchairs
Identifiers: *Muscular Dystrophy

ED276162 EC190914
Handi Helps, 1985
Colorado State Univ., Ft. Collins. Cooperative Extension Service.
Handi Helps, Jan-Apr, Oct-Dec 1985; 14p.
EDRS Price - MF01/PC01 Plus Postage.
Language: English
Document Type: SERIAL (022); NON-CLASSROOM MATERIAL (055)
Geographic Source: U.S.; Colorado
Journal Announcement: RIEAPR87
Target Audience: Practitioners; Parents
The six issues of Handi Helps presented here focus on specific issues of concern to the disabled, parents, and those working with the disabled. The two- page handi help fact sheets focus on the following topics: child sexual abuse prevention, asthma, scoliosis, the role of the occupational therapist, kidnapping, and muscular dystrophy. Each handi help provides basic information (such as cause, diagnosis, symptoms, and treatment (in the case of diseases), practical suggestions for readers, and additional resources (such as organizations, books, and films). Descriptors: Asthma; Clinical Diagnosis; *Diseases; Etiology; *Information Sources; Occupational Therapy; Sexual Abuse; *Special Health Problems; Therapy
Identifiers: Kidnapping; Muscular Dystrophy; Scoliosis

EJ628534 SE565287
Kim Davis: A Mother's Dilemma.
Hudecki, Michael S.
Journal of College Science Teaching; v30 n1 p12-16 Sep 2000
ISSN: ISSN-0047-231X
Language: English
Document Type: JOURNAL ARTICLES (080); VIEWPOINTS (120)
Journal Announcement: CIJDEC2001
Presents a discussion case in which parents must decide whether or not to enroll their sons in an experimental treatment program for muscular dystrophy. Identifies teaching objectives and discusses the key issues of the case--muscle structure and function, muscular dystrophy, scientists and money, scientific method and the FDA, and family health care decisions.
Descriptors: Biology; Codes of Ethics; Decision Making; Higher Education; Moral Values; Science Education; *Scientific Methodology
Identifiers: Food and Drug Administration; *Genetic Diseases; *Muscular Dystrophy

EJ646801 CG558538
Carpe Diem: Andy's Story.
Talbot, Richard Paul
Reclaiming Children and Youth; v11 n1 p47-51 Spr 2002
ISSN: ISSN-1089-5701
Language: English
Document Type: JOURNAL ARTICLES (080); VIEWPOINTS (120)
Journal Announcement: CIJOCT2002
Presents the story of an adolescent dying from Ducheenne muscular dystrophy. A transformation in the helping relationship occurs just as the caregiver becomes overwhelmed with the youth's anger and despair. The caregiver uses his insights from battling substance abuse and pain to help transform the youth's attitude of despair to one of living each day to the fullest.
Descriptors: Adolescents; Anger; *Caregiver Child Relationship; *Death; *Helping Relationship; Personal Narratives; *Terminal Illness
Identifiers: *Muscular Dystrophy

EJ432828 EC601447
Preparing for the Mainstream
Wolfson, Penny L.
Exceptional Parent, v21 n4 p24-26 Jun 1991
ISSN: 0046-9157
Language: English
Document Type: JOURNAL ARTICLE (080); POSITION PAPER (120)
Journal Announcement: CIJFEB92
Target Audience: Parents
A mother recounts the first experience of her 5.5-year-old son who has muscular dystrophy and learning disabilities with mainstreaming in a summer day camp.
Descriptors: *Day Camp Programs; Early Childhood Education; *Learning Disabilities; *Mainstreaming; Personal Narratives; *Physical Disabilities; *Summer Programs
Identifiers: *Muscular Dystrophy

EJ352453 EC192298
Julie Goes to College.
Morfee, Pat; Morfee, Tom
Exceptional Parent, v17 n3 p36,38 Apr 1987
Language: English
Journal Announcement: CIJAUG87
Target Audience: Parents
Parents describe how the Disabled Students' Program at the University of California-Berkeley supported their daughter with cerebral palsy in pursuing an independent college career. Two vignettes describing college students' (with muscular dystrophy and physical disabilities) adjustment at Boston University are presented.
Descriptors: *Adjustment (to Environment); *Cerebral Palsy; *College Programs; College Students; *Daily Living Skills; *Disabilities; Higher Education; Parent Child Relationship; Personal Narratives; Physical Disabilities
Identifiers: *Boston University MA; Muscular Dystrophy; *University of California Berkeley

ED288336 EC201217
Newborn Screening: National Library of Medicine Literature Search, January 1980 through March 1987. No. 87-2.
Patrias, Karen
National Library of Medicine (DHHS/NIH), Bethesda, Md.
Mar 1987; 58p.; Available From: Literature Search Program, Reference Section, National Library of Medicine, 8600 Rockville Pike, Bethesda, MD 20894 (free; send a gummed, self-addressed label).
EDRS Price - MF01/PC03 Plus Postage.
Language: English
Document Type: BIBLIOGRAPHY (131)
Geographic Source: U.S.; Maryland
Journal Announcement: RIEAPR88
Government: Federal
This bibliography, prepared by the National Library of Medicine through a literature search of its online databases, covers all aspects of newborn screening. It includes references to screening for: inborn errors of metabolism, such as phenylketonuria and galactosemia; hemoglobinopathies, particularly sickle cell disease; congenital hypothyroidism and congenital adrenal hyperplasia; cystic fibrosis; and muscular dystrophy. Citations are primarily to journal articles from "Medline," "Health Planning and Administration," and "Bioethicsline." The bibliography contains over 750 references to English and foreign-language publications, issued between January 1980 and March 1987, in alphabetic order.
Descriptors: *Congenital Impairments; *Disabilities; *Handicap Identification; Metabolism; *Neonates; *Screening Tests; Sickle Cell Anemia; Special Health Problems
Identifiers: Cystic Fibrosis; Galactosemia; Hypothyroidism; Muscular Dystrophy; Phenylketonuria

EJ306770 EC170283
Helping Our Children Accept Themselves.
Gamble, Mae
Exceptional Parent, v14 n4 p48-51 Jun 1984
Language: English
Journal Announcement: CIJFEB85
Target Audience: Parents
Parents of a child with muscular dystrophy recount their reactions to learning of the diagnosis, their gradual acceptance, and their son's resistance, which was gradually lessened when he was provided with more information and treated more normally as a member of the family.
Descriptors: *Coping; *Diseases; *Emotional Adjustment; Family Relationship; Parent Materials; Personal Narratives; Physical Disabilities
Identifiers: *Muscular Dystrophy

EJ296566 CG525900
Personality Correlates and Degree of Impairment in Male Adolescents with Progressive and Nonprogressive Physical Disorders.
Harper, Dennis C.
Journal of Clinical Psychology, v39 n6 p859-67 Nov 1983
Language: English
Document Type: RESEARCH REPORT (143)
Journal Announcement: CIJJUL84
Investigated 44 adolescents with physical impairment to determine the relationship among personality correlates, disability type, functional level of impairment, and rapidity of decline in those with progressive disease. Results showed similarities to severe physical limitations in both groups of males regardless of diagnosis or progression of their physical status.
Descriptors: Adjustment (to Environment); *Adolescents; Males; Mild Disabilities; *Personality Traits; *Physical Disabilities; Severe Disabilities
Identifiers: Muscular Dystrophy; Orthopedic Disabilities

EJ280357 TM508016
Effects of Passive Physical Exercise on Peripheral Vision in Muscular Dystrophic Children.
Eickelberg, Warren; And Others
Perceptual and Motor Skills, v56 n1 p167-70 Feb 1983
Language: English
Journal Announcement: CIJAUG83
The effects of passive exercise of the extremities on peripheral vision of muscular dystrophic children aged 9 to 13 years was investigated. Compared to control subjects, those who experienced six minutes of passive exercise evidenced increased peripheral vision. Curriculum revisions for muscular dystrophic children indicate the importance of activity in facilitating learning.
Descriptors: Cardiovascular System; *Developmental Disabilities; *Exercise; *Exercise Physiology; Intermediate Grades; Motor Reactions; *Training Methods; *Vision; Visual Impairments
Identifiers: Hypoxia; *Muscular Dystrophy; *Peripheral Vision

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