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MEDICAL/MOBILITY/OTHER HEALTH IMPAIRMENTS
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ALS DIGEST
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Biweekly newsletter on amytrophic lateral sclerosis or motor neuron
disease
Subscription address: To subscribe or to submit material, write to:
bro@huey.met.fsu.edu |
AMPUTEE
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Amputees and friends/relatives/concerned professionals
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: amputee@sjuvm.stjohns.edu
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ARTHRITIS-L
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Arthritis/rheumatology research
Subscription address: listproc@showme.missouri.edu
Post messages to: arthritis-l@showme.missouri.edu
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BIFIDA-L
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Spina bifida
Subscription address: bifida-l-subscribe@onelist.com
Post messages to: bifida-l@onelist.com
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BI-PEDIA
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For families of children with brain injuries, either traumatic or
acquired
Subscription address: listproc@lists.acs.ohio-state-edu
Post messages to: bi-pedia@lists.acs.ohio-state-edu
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BRAINTMR
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Brain tumors information exchange
Subscription address: To join, send a message to:
Samantha Scolamiero, at: samajane@athena.mit.edu
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CATHARSIS
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Monthly newsletter for those in the CFS/CFIDS/M.E. community
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: catharsis@sjuvm.stjohns.edu
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CDLS-KIDS
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Cornelia deLange Syndrome support list
Subscription address: cdls-kids-subscribe@onelist.com
Post messages to: cdls-kids@onelist.com
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CFS-L
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Chronic fatigue syndrome
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: cfs-l@sjuvm.stjohns.edu
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CFS-MED
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Chronic fatigue syndrome medical list
Subscription address: listserv@list.nih.gov
Post messages to: cfs-med@list.nih.gov
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CFS-NEWS
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Monthly medical news about CFS/CFIDS/M.E.
Subscription address: listserv@list.nih.gov
Post messages to: cfs-news@list.nih.gov
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CFS-WIRE
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Exchange of news by CFS support groups
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: cfs-wire@sjuvm.stjohns.edu
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CHILDHOODEPILEPSY
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Discussion of treatments and emotional support for parents of children
with severe epilepsy
Subscription address: childhoodepilepsy-subscribe@topica.com
Post messages to: childhoodepilepsy@topica.com
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Cleft, Chat and Smile
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For families of children, teens, and adults born with cleft lip/palate
Subscription address: cleftchat-subscribe@topica.com
Post messages to: cleftchat@topica.com
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CLEFT-TALK
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For families of children with cleft lip/palate or other craniofacial
differences
Subscription address: listproc@mother.com
Post messages to: cleft-talk@mother.com
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CJD-L
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Creutzfeldt-Jakob Disease; for researchers
Subscription address: listserv@rz.ni-karlsruhe.de
Post messages to: cjd-l@listserv@rz.ni-karlsruhe.de
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CLL
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Chronic Lymphocytic Leukemia
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: cll@maelstrom.stjohns.edu
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CMT
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Charcot-Marie-Tooth and related neuropathies
Subscription address: majordomo@colossus.net
Post messages to: cmt@colossus.net
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C-PALSY
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Cerebral palsy
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: c-palsy@sjuvm.stjohns.edu
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CP_DYSTONIA-L
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Cerebral palsy/dystonia
Subscription address: requests@challenge.net
Post messages to: cp_dystonia-l@challenge.net
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CPParent
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Parenting of children with cerebral palsy
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: cpparent@sjuvm.stjohns.edu
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CSHCN-L
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Issues about children with special health care needs
Subscription address: cshcn-l-join@mchenet.ichp.edu
Post messages to: cshcn-l@mchenet.ichp.edu
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CTTEEN
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For teens affected by cleft lip/palate
Subscription address: webmaster@widesmiles.org
Post messages to: ctteen@widesmiles.org
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CYSTIC-L
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Support forum for people with cystic fibrosis
Subscription address: listserv@home.ease.lsoft.com
Post messages to: Cystic-L@home.ease.lsoft.com
http://Cystic-L.org
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DADVOCAT
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For dads of children with disabilities or special health needs
Subscription address: listserv@lsv.uky.edu
Post messages to: dadvocat@lsv.uky.edu
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DIABETES-NEWS
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Weekly newsletter on diabetes; distribution, not discussion
Subscription address: diabetes-news-request@lists.best.com
Post messages to: (not applicable)
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DIABETIC
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Diabetes
Subscription address: listserv@lehighedu
Post messages to: diabetic@lehighedu
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DisabledParenting
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For parents who have a disability
Subscription address: http://www.onelist.com
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DYSPHAGIA
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Swallowing and its disorders
Subscription address: majordomo@cybersport.com
Post messages to: dysphagia@cybersport.com
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EPILEPSY-LIST
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Epilepsy
Subscription address: listserv@calvin.dgbt.doc.ca
Post messages to: epilepsy-list@calvin.dgbt.doc.ca
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FASLINK
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Fetal alcohol syndrome/effects
Subscription address: manager@list.ccsa.ca
Post messages to: faslink@list.ccsa.ca
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FRAGILEX-L
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Fragile X syndrome
Subscription address: http://listserv.service.emory.edu/Archives/fragilex-l.html
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FRAGILEX
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Fragile X syndrome
Subscription address: majordomo@counterpoint.com
Post messages to: fragilex@counterpoint.com
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GSDNET
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Glycogen storage disease network (individuals/families/professionals)
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: gsdnet@maelstrom.stjohns.edu
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HCONF
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A conference forum with guest speakers on hydrocephalus
Subscription address: listserv@listserv.utoronto.ca
You will receive instructions upon subscription
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HEMI-KIDS
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Support for parents of children with hemiplegia (cerebral palsy)
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: hemi-kids@maelstrom.stjohns.edu
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HIJOS-ESP
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Discussion in Spanish of parenting children with cerebral palsy or
related affections
Subscription address: listserv@listserv.rediris.es
Post messages to: hijos-esp@listserv.rediris.es
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HUNT-DIS
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Huntington's disease
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: hunt-dis@sjuvm.stjohns.edu
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HYCEPH-L
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Information and support forum for hydrocephalus
Subscription address: listserv@vm.utcc.utoronto.ca
Post messages to: hyceph-l@vm.utcc.utoronto.ca
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IMMUNE
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Immune deficiency
Subscription address: listserv@weber.used.edu
Post messages to: immune@weber.used.edu
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INCONT-L
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Incontinence
Subscription address: incont-l-request@maine.maine.edu
Post messages to: incont-l@maine.maine.edu
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JARRETT'S JOURNAL
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Journal containing disabled/medical newsbytes,
book reviews, and features
Subscription address: listserv@maelstrom.stjohns.edu
Message: Subscribe J-JRNL yourname
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KidsWithEpilepsy
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Support forum for kids with epilepsy
Subscription address:
http://groups.yahoo.com/subscribe/KidsWithEpilepsy
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L-HCAP
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Handicapped digest; discussion of life
with a disabling condition
Subscription address: listserv@vm1.nodak.edu
Post messages to: l-hcap@vm1.nodak.edu
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LIFEPLANNING
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Life planning for individuals with disabilities
Subscription address: majordomo@sonic.net
Post messages to: lifeplanning-list@sonic.net
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LIVING
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Women only; physical disability
(temporary or permanent)
Subscription address: majordomo@qiclab.scn.rain.com
Post messages to: living@qiclab.scn.rain.com
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LYMENET-L
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Biweekly newsletter focusing on Lyme disease
Subscription address: listserv@lehigh.edu
Post messages to: lymenet-l@lehigh.edu
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MCS-IMMUNE-NEURO
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Multiple chemical sensitivities (MCS), chemical injury, nervous system
disorders, autoimmune diseases
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: mcs-immune-neuro@maelstrom.stjohns.edu
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MD-LIST
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Muscular dystrophy and related neuro-muscular diseases
Subscription address: md-list-request@data.basix.com
Post messages to: md-list@data.basix.com
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MOBILITY
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Mobility impairments
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: mobility@sjuvm.stjohns.edu
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MPD-NET
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Myeloproliferative disorders
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: mpd-net@sjuvm.stjohns.edu
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MS-LIST
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Multiple sclerosis
Subscription address: listserv@technion.bitnet
Post messages to: ms-list@technion.bitnet
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MULTIPLE SCLEROSIS
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Dutch (and English) discussion list on multiple sclerosis
Subscription address: listserv@nt-admin.comt
Post messages to: ms@nt-admin.com
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MY-FACE
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Facial disfigurements
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: my-face@sjuvm.stjohns.edu
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NO-MILK
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Discussion of milk/casein/lactose-free diet, allergies, or behaviors
sometimes aggravated by milk
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: no-milk@sjuvm.stjohns.edu
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PAIN-L
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Chronic pain
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: pain-l@maelstrom.stjohns.edu
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PARKNSN
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Parkinson's disease
Subscription address: parkinsn-request@vmutcc.utoronto.ca
Post messages to: parknsn@vm.utcc.utoronto.ca
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PCA
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Personal care assistance
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: pca@maelstrom.stjohns.edu
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PEDIATRICS FOR PARENTS
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Monthly e-zine covering advances in children's health care by health
care professionals
Subscription address: pediatricsforparents@pobox.com
In the body of the message: subscribe [put your e-mail address here]
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POLIO
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Polio
Subscription address: listserv@sjuvm.st.johns.edu
Post messages to: polio@sjuvm.st.johns.edu
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PRADER-WILLI
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Prader-Willi syndrome
Subscription address: To join, send a message to: visink@delphi.com
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PRADER-WILLI SYNDROME
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Prader-Willi syndrome
Subscription address: Prader-Willi_Syndrome-subscribe@topica.com
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REHAB-RU
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Physical medicine and rehabilitation in rural settings
Subscription address: listserv@ukcc.uky.edu
Post messages to: rehab-ru@ukcc.uky.edu
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RISG-L
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Reiter's Syndrome, Ankylosing Spondylitis (arthritic conditions) support
group
Subscription address: listserv@home.ease.lsoft.com
Post messages to: risg-l@home.ease.lsoft.com
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RSI
|
Newsletter on repetitive sequence injury
(carpal tunnel syndrome)
Subscription address: majordomo@world.std.com
Post messages to: rsi@world.std.com
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RSI-EAST
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Repetitive sequence injury; treatment, adaptive devices, friendly
ears
Subscription address: listserv@sjuvm.st.johns.edu
Post messages to: rsi-east@sjuvm.st.johns.edu
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SB-PARENTS
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For parents of children who have spina bifida
Subscription address: listserv@waisman.wisc.edu
Post messages to: sb-parents@waisman.wisc.edu
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| SERVICE-DOGS |
About guide/hearing/service or other assistance dogs
Subscription address: majordomo@acpub.duke.edu
Post messages to: service-dogs@acpub.duke.edu
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SJOGREN'S SYNDROME
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Support forum for Sjogren's syndrome
Subscription address: To join, send a message to: vmd@cso.uiuc.edu
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SOREHAND
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Carpal tunnel syndrome and tendonitis
Subscription address: listserv@uscfvm.ucsf.edu
Post messages to: sorehand@uscfvm.ucsf.edu
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STRENGTH-L
|
Neuromuscular disease
Subscription address: strength-l-request@dnaco.net
For digest version: strength-l-digest-request@dnaco.net
Post messages to: strength-l@dnaco.net
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STROKE-L
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Strokes and cerebrovascular accidents
Subscription address: listserv@ukcc.uky.edu
Post messages to: stroke-l@ukcc.uky.edu
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TBI-SPRT
|
Traumatic brain injury/neurological impairments support
Subscription address: listserv@moria.nfbcal.org
Post messages to: tbi-sprt@moria.nfbcal.org
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THERAPY DOGS USA
|
Animal-assisted activities/therapy
Subscription address:
http://groups.yahoo.com/subscribe/therapydogsusa
Post messages to: therapydogsusa@onelist.com
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THYROID
|
Thyroid conditions and diseases
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: thyroid@maelstrom.stjohns.edu
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TCTALK
|
Treacher Collins syndrome or other craniofacial conditions
Subscription address: Majordomo@UserHome.com
Post messages to: tctalk@UserHome.com
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TSCTALK
|
Tuberous Sclerosis
Subscription address: majordomo@aura.title14.com
Post messages to: tsctalk@aura.title14.com
http://www.title14.com/tsctalk
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TuberousSclerosis
|
Tuberous Sclerosis
Subscription address: TuberousSclerosis-subscribe@onelist.com
Post messages to: TuberousSclerosis@onelist.com
http://groups.yahoo.com/subscribe.cgi/TuberousSclerosis
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TRISOMY-L
|
Family-oriented forum for people interested in Trisomy 18, Trisomy
13, and other related chromosomal disorders
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: trisomy-l@maelstrom.stjohns.edu
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VOCEVAL
|
Vocational evaluation, adaptive technology
Subscription address: listserv@sjuvm.st.johns.edu
Post messages to: voceval@sjuvm.st.johns.edu
|
Thanks!
