Applications of Participatory Action Research with Students who Have Disabilities
The ERIC Clearinghouse on Disabilities and Gifted Education (ERIC EC)
ERIC/OSEP Digest #E646
Authors: Cynthia Warger and Jane Burnette
Participatory action research is an approach in which researchers and stakeholders (those individuals who might benefit from the research findings) collaboratively engage in the various stages of the research process. Participatory action research provides for greater influence of stakeholders in the research process and a higher level of support for the implementation of research findings in practice. This digest offers several examples of how researchers and practitioners are using participatory action research data to select effective practices and support change and innovation. The following sections illustrate applications of participatory action research in related services for young children, inclusion in elementary schools, working with families, and transition to adulthood.
Generating Data-based Strategies in Natural Environments
It is important for related service providers to validate what they do in their daily practice to ensure that their services improve the quality of life for children and their families. Participatory action research can help therapists explore questions about the efficacy of therapy practices within a child's and family's natural environments.
A study in progress at Thomas Jefferson University in Philadelphia pairs therapists with research mentors to conduct individualized research. Occupational and physical therapists implement small-scale research studies with a child and/or family who are part of their caseload. To support the research process, the research mentor provides guidance on formulating research questions, conducting the study, interpreting the results, and preparing a presentation on results.
The therapists volunteer to receive training related to best practices in natural environments, data collection, and other aspects of research investigations. The nature and type of data to be collected depends upon decisions made by each therapist/mentor team. Much of the data and documentation required for this type of participatory action research may already part of the child's individualized family services plan (IFSP).
According to Phillipa Campbell, the study's director, these collaborative research teams work because there is ongoing contact between the mentors and therapists. Mentors need to be present at all stages of the research, and they must feel comfortable sharing their expertise and skills as part of the research process.
Promoting Inclusive Schooling Practices
Research shows that the participatory action research approach can improve professional practice and promote the inclusion of students with disabilities, including those with significant challenges, in general classrooms. In studies with elementary school teachers and administrators in several school districts, teachers and administrators were introduced to participatory action research methods and then guided through the steps of sharing issues and forming issue-focused workgroups that developed action-based and technical support plans (Salisbury, Wilson, Swartz, Palombaro, & Wassel,1997). Action plans described the question, the type of information to be collected, and the proposed methods for addressing the issue. Monthly workgroup meetings were held to discuss findings, analyze data, explore emerging issues, and determine next steps.
Another study addressed how building principals might use participatory action research to collect data to provide information for school improvement initiatives (Salisbury, Wilson, & Palombaro, 1998). Administrators used the process to become more reflective and to cultivate a culture of inquiry with their teachers about special education implementation issues.
Throughout the process, these researchers documented lessons learned about the adoption and use of participatory action research:
Conducting Collaborative Family Research
An OSEP-funded parent information center, The Grassroots Consortium on Disabilities, and the Beach Center on Family and Disabilities at University of Kansas have established a partnership to provide a participatory action research model for collaboration between researchers and families. The goal is for participatory action research teams composed of researchers and culturally and linguistically diverse families to discover new relationships that broaden the scope of their commitment to research as a means of social change and contribute to a deeper understanding of the critical role research plays in finding practical solutions for families.
In one project, researchers supported families of children with behavioral difficulties in learning how to gather data about their child (e.g., strengths, needs, likes, dislikes), develop a functional behavioral assessment for their child, and participate as full partners in the development of a positive behavioral support plan.
Participatory action research produced the following advantages:
There were also several advantages for family members. Parents gained a sense that their opinions and experiences were valued. Their concerns were heard and their comments were incorporated into research that will benefit society. They also expressed appreciation because the process necessitated their having to think about things they may never have considered before, such as the determinants of quality of life for them personally and for their families.
Challenges encountered in using participatory action research with families include time and resources. "Every kind of collaborative problem solving approach requires time," Ursula Markey, one of the study directors, asserts. "A particularly critical element related to time is the amount needed to develop trusting relationships with families-especially those families who have felt exploited by researchers in the past." Markey says that it can sometimes take 1-2 years of ongoing communication before trust is sufficient for a genuine partnership to evolve. Resources also need to be considered, since families should be compensated for their time and reimbursed for expenses.
Studying Social Inclusion at Worksites
"Participatory action research can reduce the gap between research and practice, resulting in enhanced outcomes for students with disabilities," says Hyun-Sook Park, researcher at San Jose State University. "Collaborative decision making with stakeholders makes the selection of research questions more meaningful to them; it helps them address issues related to the implementation of innovations, which often results in actions that are more doable and sustainable overtime."
Park and her colleagues applied participatory action research to the intervention study of social inclusion at worksites (Park, Gonsier-Gerdin, Hoffman, Whaley, & Yount, 1998). Stakeholders were involved at various stages in the research process-establishing research questions, collecting data, implementing interventions, validating and interpreting outcomes, and disseminating results. The intervention was viewed as a process for generating strategies to support social inclusion. Researchers and stakeholders reviewed the data about students' work and social experiences at their worksites. In work situations where the majority of students were not socially included, researchers and stakeholders interpreted the data together and generated actions to alter the situation. These discussions led to work group meetings in which researchers and stakeholders brainstormed strategies and selected some that were eventually implemented. Researchers found that the participatory action research process empowered teachers and job coaches to take ownership of their action changes and resulted in the increased social inclusion of participants with disabilities in competitive work environments.
According to Park, the key to making the process work was establishing trust and respect. "Practitioners saw that researchers were really trying to listen to them and understand their perspectives. It was a slow process, but eventually practitioners saw themselves as part of the dialogue."
Park offers the following suggestions:
Markey, U. (2000). PARtnerships. Journal of Positive Behavior Interventions, 2(3), 188-189, 192.
Meyer, L., Park, H., Grenot-Scheyer, M., Schwartz, I., & Harry, B. (1998). Participatory research: New approaches to the research to practice dilemma. JASH,* 23(3), 165-177.
Park, Hyun-Sook, Gonsier-Gerdin, J., Hoffman, S., Whaley, S., & Yount, M. (1998). Applying the participatory action research model to the study of social inclusion at worksites. JASH,* 23(3), 189-202.
Salisbury, C., Wilson, L., Swartz, T., Palombaro, M., & Wassel, M. (1997). Using action research to solve instructional challenges in inclusive elementary school settings. Education and Treatment of Children, 20(1), 21-38.
Salisbury, C., Wilson, L., & Palombaro, M. (1998). Promoting inclusive schooling practices through practitioner directed inquiry. JASH,* 23(3), 223-237.
Turnbull, A., Friesen, B., & Ramirez, C. (1998). Participatory action research as a model for conducting family research. JASH,* 23(3), 178-188.Beach Center on Families and Disabilities
Grassroots Consortium on Disabilities
*Journal of the Association for the Severely Handicapped (JASH) is now Research and Practice for Persons with Severe Disabilities.
ERIC Clearinghouse on Disabilities and Gifted Education