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MEDICAL/MOBILITY/OTHER HEALTH IMPAIRMENTS
ALS DIGEST
Biweekly newsletter on amytrophic lateral sclerosis or motor neuron disease
Subscription address: To subscribe or to submit material, write to:
bro@huey.met.fsu.edu
AMPUTEE
Amputees and friends/relatives/concerned professionals
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: amputee@sjuvm.stjohns.edu
ARTHRITIS-L
Arthritis/rheumatology research
Subscription address: listproc@showme.missouri.edu
Post messages to: arthritis-l@showme.missouri.edu
BIFIDA-L
Spina bifida
Subscription address: bifida-l-subscribe@onelist.com
Post messages to: bifida-l@onelist.com
BI-PEDIA
For families of children with brain injuries, either traumatic or acquired
Subscription address: listproc@lists.acs.ohio-state-edu
Post messages to: bi-pedia@lists.acs.ohio-state-edu
BRAINTMR
Brain tumors information exchange
Subscription address: To join, send a message to:
Samantha Scolamiero, at: samajane@athena.mit.edu
CATHARSIS
Monthly newsletter for those in the CFS/CFIDS/M.E. community
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: catharsis@sjuvm.stjohns.edu
CDLS-KIDS
Cornelia deLange Syndrome support list
Subscription address: cdls-kids-subscribe@onelist.com
Post messages to: cdls-kids@onelist.com
CFS-L
Chronic fatigue syndrome
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: cfs-l@sjuvm.stjohns.edu
CFS-MED
Chronic fatigue syndrome medical list
Subscription address: listserv@list.nih.gov
Post messages to: cfs-med@list.nih.gov
CFS-NEWS
Monthly medical news about CFS/CFIDS/M.E.
Subscription address: listserv@list.nih.gov
Post messages to: cfs-news@list.nih.gov
CFS-WIRE
Exchange of news by CFS support groups
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: cfs-wire@sjuvm.stjohns.edu
CHILDHOODEPILEPSY
Discussion of treatments and emotional support for parents of children with severe epilepsy
Subscription address: childhoodepilepsy-subscribe@topica.com
Post messages to: childhoodepilepsy@topica.com
Cleft, Chat and Smile
For families of children, teens, and adults born with cleft lip/palate
Subscription address: cleftchat-subscribe@topica.com
Post messages to: cleftchat@topica.com
CLEFT-TALK
For families of children with cleft lip/palate or other craniofacial differences
Subscription address: listproc@mother.com
Post messages to: cleft-talk@mother.com
CJD-L
Creutzfeldt-Jakob Disease; for researchers
Subscription address: listserv@rz.ni-karlsruhe.de
Post messages to: cjd-l@listserv@rz.ni-karlsruhe.de
CLL
Chronic Lymphocytic Leukemia
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: cll@maelstrom.stjohns.edu
CMT
Charcot-Marie-Tooth and related neuropathies
Subscription address: majordomo@colossus.net
Post messages to: cmt@colossus.net
C-PALSY
Cerebral palsy
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: c-palsy@sjuvm.stjohns.edu
CP_DYSTONIA-L
Cerebral palsy/dystonia
Subscription address: requests@challenge.net
Post messages to: cp_dystonia-l@challenge.net
CPParent
Parenting of children with cerebral palsy
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: cpparent@sjuvm.stjohns.edu
CSHCN-L
Issues about children with special health care needs
Subscription address: cshcn-l-join@mchenet.ichp.edu
Post messages to: cshcn-l@mchenet.ichp.edu
CTTEEN
For teens affected by cleft lip/palate
Subscription address: webmaster@widesmiles.org
Post messages to: ctteen@widesmiles.org
CYSTIC-L
Support forum for people with cystic fibrosis
Subscription address: listserv@home.ease.lsoft.com
Post messages to: Cystic-L@home.ease.lsoft.com
http://Cystic-L.org
DADVOCAT
For dads of children with disabilities or special health needs
Subscription address: listserv@lsv.uky.edu
Post messages to: dadvocat@lsv.uky.edu
DIABETES-NEWS
Weekly newsletter on diabetes; distribution, not discussion
Subscription address: diabetes-news-request@lists.best.com
Post messages to: (not applicable)
DIABETIC
Diabetes
Subscription address: listserv@lehighedu
Post messages to: diabetic@lehighedu
DisabledParenting
For parents who have a disability
Subscription address: http://www.onelist.com
DYSPHAGIA
Swallowing and its disorders
Subscription address: majordomo@cybersport.com
Post messages to: dysphagia@cybersport.com
EPILEPSY-LIST
Epilepsy
Subscription address: listserv@calvin.dgbt.doc.ca
Post messages to: epilepsy-list@calvin.dgbt.doc.ca
FASLINK
Fetal alcohol syndrome/effects
Subscription address: manager@list.ccsa.ca
Post messages to: faslink@list.ccsa.ca
FRAGILEX-L
Fragile X syndrome
Subscription address: http://listserv.service.emory.edu/Archives/fragilex-l.html
FRAGILEX
Fragile X syndrome
Subscription address: majordomo@counterpoint.com
Post messages to: fragilex@counterpoint.com
GSDNET
Glycogen storage disease network (individuals/families/professionals)
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: gsdnet@maelstrom.stjohns.edu
HCONF
A conference forum with guest speakers on hydrocephalus
Subscription address: listserv@listserv.utoronto.ca
You will receive instructions upon subscription
HEMI-KIDS
Support for parents of children with hemiplegia (cerebral palsy)
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: hemi-kids@maelstrom.stjohns.edu
HIJOS-ESP
Discussion in Spanish of parenting children with cerebral palsy or related affections
Subscription address: listserv@listserv.rediris.es
Post messages to: hijos-esp@listserv.rediris.es
HUNT-DIS
Huntington's disease
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: hunt-dis@sjuvm.stjohns.edu
HYCEPH-L
Information and support forum for hydrocephalus
Subscription address: listserv@vm.utcc.utoronto.ca
Post messages to: hyceph-l@vm.utcc.utoronto.ca
IMMUNE
Immune deficiency
Subscription address: listserv@weber.used.edu
Post messages to: immune@weber.used.edu
INCONT-L
Incontinence
Subscription address: incont-l-request@maine.maine.edu
Post messages to: incont-l@maine.maine.edu
JARRETT'S JOURNAL
Journal containing disabled/medical newsbytes,
book reviews, and features

Subscription address: listserv@maelstrom.stjohns.edu
Message: Subscribe J-JRNL yourname
KidsWithEpilepsy
Support forum for kids with epilepsy
Subscription address:
http://groups.yahoo.com/subscribe/KidsWithEpilepsy
L-HCAP
Handicapped digest; discussion of life
with a disabling condition

Subscription address: listserv@vm1.nodak.edu
Post messages to: l-hcap@vm1.nodak.edu
LIFEPLANNING
Life planning for individuals with disabilities
Subscription address: majordomo@sonic.net
Post messages to: lifeplanning-list@sonic.net
LIVING
Women only; physical disability
(temporary or permanent)

Subscription address: majordomo@qiclab.scn.rain.com
Post messages to: living@qiclab.scn.rain.com
LYMENET-L
Biweekly newsletter focusing on Lyme disease
Subscription address: listserv@lehigh.edu
Post messages to: lymenet-l@lehigh.edu
MCS-IMMUNE-NEURO
Multiple chemical sensitivities (MCS), chemical injury, nervous system disorders, autoimmune diseases
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: mcs-immune-neuro@maelstrom.stjohns.edu
MD-LIST
Muscular dystrophy and related neuro-muscular diseases
Subscription address: md-list-request@data.basix.com
Post messages to: md-list@data.basix.com
MOBILITY
Mobility impairments
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: mobility@sjuvm.stjohns.edu
MPD-NET
Myeloproliferative disorders
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: mpd-net@sjuvm.stjohns.edu
MS-LIST
Multiple sclerosis
Subscription address: listserv@technion.bitnet
Post messages to: ms-list@technion.bitnet
MULTIPLE SCLEROSIS
Dutch (and English) discussion list on multiple sclerosis
Subscription address: listserv@nt-admin.comt
Post messages to: ms@nt-admin.com
MY-FACE
Facial disfigurements
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: my-face@sjuvm.stjohns.edu
NO-MILK
Discussion of milk/casein/lactose-free diet, allergies, or behaviors sometimes aggravated by milk
Subscription address: listserv@sjuvm.stjohns.edu
Post messages to: no-milk@sjuvm.stjohns.edu
PAIN-L
Chronic pain
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: pain-l@maelstrom.stjohns.edu
PARKNSN
Parkinson's disease
Subscription address: parkinsn-request@vmutcc.utoronto.ca
Post messages to: parknsn@vm.utcc.utoronto.ca
PCA
Personal care assistance
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: pca@maelstrom.stjohns.edu
PEDIATRICS FOR PARENTS
Monthly e-zine covering advances in children's health care by health care professionals
Subscription address: pediatricsforparents@pobox.com
In the body of the message: subscribe [put your e-mail address here]
POLIO
Polio
Subscription address: listserv@sjuvm.st.johns.edu
Post messages to: polio@sjuvm.st.johns.edu
PRADER-WILLI
Prader-Willi syndrome
Subscription address: To join, send a message to: visink@delphi.com
PRADER-WILLI SYNDROME
Prader-Willi syndrome
Subscription address: Prader-Willi_Syndrome-subscribe@topica.com
REHAB-RU
Physical medicine and rehabilitation in rural settings
Subscription address: listserv@ukcc.uky.edu
Post messages to: rehab-ru@ukcc.uky.edu
RISG-L
Reiter's Syndrome, Ankylosing Spondylitis (arthritic conditions) support group
Subscription address: listserv@home.ease.lsoft.com
Post messages to: risg-l@home.ease.lsoft.com
RSI
Newsletter on repetitive sequence injury
(carpal tunnel syndrome)

Subscription address: majordomo@world.std.com
Post messages to: rsi@world.std.com
RSI-EAST
Repetitive sequence injury; treatment, adaptive devices, friendly ears
Subscription address: listserv@sjuvm.st.johns.edu
Post messages to: rsi-east@sjuvm.st.johns.edu
SB-PARENTS
For parents of children who have spina bifida
Subscription address: listserv@waisman.wisc.edu
Post messages to: sb-parents@waisman.wisc.edu
SERVICE-DOGS About guide/hearing/service or other assistance dogs
Subscription address: majordomo@acpub.duke.edu
Post messages to: service-dogs@acpub.duke.edu
SJOGREN'S SYNDROME
Support forum for Sjogren's syndrome
Subscription address: To join, send a message to: vmd@cso.uiuc.edu
SOREHAND
Carpal tunnel syndrome and tendonitis
Subscription address: listserv@uscfvm.ucsf.edu
Post messages to: sorehand@uscfvm.ucsf.edu
STRENGTH-L
Neuromuscular disease
Subscription address: strength-l-request@dnaco.net
For digest version: strength-l-digest-request@dnaco.net
Post messages to: strength-l@dnaco.net
STROKE-L
Strokes and cerebrovascular accidents
Subscription address: listserv@ukcc.uky.edu
Post messages to: stroke-l@ukcc.uky.edu
TBI-SPRT
Traumatic brain injury/neurological impairments support
Subscription address: listserv@moria.nfbcal.org
Post messages to: tbi-sprt@moria.nfbcal.org
THERAPY DOGS USA
Animal-assisted activities/therapy
Subscription address:
http://groups.yahoo.com/subscribe/therapydogsusa
Post messages to: therapydogsusa@onelist.com
THYROID
Thyroid conditions and diseases
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: thyroid@maelstrom.stjohns.edu
TCTALK
Treacher Collins syndrome or other craniofacial conditions
Subscription address: Majordomo@UserHome.com
Post messages to: tctalk@UserHome.com
TSCTALK
Tuberous Sclerosis
Subscription address: majordomo@aura.title14.com
Post messages to: tsctalk@aura.title14.com
http://www.title14.com/tsctalk
TuberousSclerosis
Tuberous Sclerosis
Subscription address: TuberousSclerosis-subscribe@onelist.com
Post messages to: TuberousSclerosis@onelist.com
http://groups.yahoo.com/subscribe.cgi/TuberousSclerosis
TRISOMY-L
Family-oriented forum for people interested in Trisomy 18, Trisomy 13, and other related chromosomal disorders
Subscription address: listserv@maelstrom.stjohns.edu
Post messages to: trisomy-l@maelstrom.stjohns.edu
VOCEVAL
Vocational evaluation, adaptive technology
Subscription address: listserv@sjuvm.st.johns.edu
Post messages to: voceval@sjuvm.st.johns.edu

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ERIC Clearinghouse on Disabilities and Gifted Education
Last updated: December 5, 2001
 

 


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